Thyroid UK Support

Membership of Coeliac UK, change of policy for membership

Maddie
Posted by Maddie
10 Mar 2013
15 comments

Coeliac UK re now offering membership to those who are seeking a diagnosis or wanting to receive information to support friends and family with coeliac disease and dermatitis herpetiformis.

Previously you had to have a diagnosis to join, they have recently changed their policy.

Also, their is free membership until 30 April 2013

www.coeliac.org.uk/members/...

I've just joined online, there is lots of info for those wanting to avoid gluten.

Leave a comment    See 15 comments

15 comments

LouiseWarvillToo
LouiseWarvillToo Thyroid UK
10 Mar 2013
Hi Maddie

I'm sure a lot of our people will be interested in this. Do you know how much membership will be after 30 April? I couldn't find the info during a very quick look on their website - thanks! :-)

Also, I assume you have also posted this on GFG? :-)

Louise
xx

Reply to this

Maddie
Maddie
11 Mar 2013
Hi Louise - I thouht that some members would be interested as there are users of this forum who are following a gluten free diet but do not have a diagnosis of Coeliac disease. It is a very useful resource, in the past they did not permit full membership to those who did not have a diagnosis.

Membership fee categories:

Free membership until 30 April 2013 - then (unless they change from 1st May)

Individual, £20 per year- for adults or parents and carers of a child under 16 years.

Concessionary, £10 per year- as above for those on a reduced income, eg Registered unemployed, students and those on a State pension or benefits.

Sorry, don't know what GFG is - Maddie

Reply to this

LouiseWarvillToo
LouiseWarvillToo Thyroid UK
11 Mar 2013
Hi Maddie

Thanks, really helpful info! :-)

glutenfreeguerrillas.health...

Louise
x :-)

Reply to this

marsden
marsden
10 Mar 2013
hi maddie ,i have coeliac disease ,do you ? was diagnosed at the end of 2010 i have been a member for 2 years and they send you very usefull magazines that are full of good info x

Reply to this

LouiseWarvillToo
LouiseWarvillToo Thyroid UK
10 Mar 2013
Hi Marsden

Do you know what the cost will be after April? Thanks. :-)

Louise
xx

Reply to this

RedApple
RedApple Admin
10 Mar 2013
Have sent you an email (to office) :)

Reply to this

Maddie
Maddie
11 Mar 2013
Hi Marsden - I do not have a diagnosis but have just had a blood test with my GP. Having to eat gluten for a few weeks prior to the test has upset my digestive system so even if the test is negative I need to avoid gluten. I know that a negative result from the bood test is not always accurate but I'm not going to ask for a biopsy.

I have a friend who has the condition and she passes on her magazines to me, getting access to the info on the coeliac UK site is goin to be very helpful.

Reply to this

marsden
marsden
11 Mar 2013
hi ,i believe even if you havent got coeliac having a gluten free diet is better for your body anyway,but not always easy when your out as not many places cater for a gluten free diet. if you do have it it should show up in your blood.i had a blood test and it showed signs of coeliac but to get a actual diagnosis for certain you have to have a endoscopyfor thebiopsy which isnt pleasant,they put a tube down your throat while you are awake,i had to have two as the first was inconclusive. wouldnt fancy anymore either.if you ever want any advice or anything just drop me a line, i dont know anyone else with coeliac so good to chat to people in similar boat. x

Reply to this

Maddie
Maddie
12 Mar 2013
Hi - I remember having an endoscopy when I was diagnosed with acid reflux. That's why I know that I could'nt go through the procedure again, I was terrified.

I'll let you know if I have a positive result - Maddie

Reply to this

ChristineNeil
ChristineNeil
10 Mar 2013
I think that you have to make a minimum donation of £5.00 to navigate the site after joining.

Reply to this

APsnotFab
APsnotFab
10 Mar 2013
I believe its £10 for those who are on concessions (pensioners, benefits, low income etc, £20 for full membership. You get a Directory of all GF food from every source - Supermarkets, manufacturers etc which can be trusted, this is updated monthly. There is a helpline for information including a Dietician. The online info includes all the places you can eat out in the country as well as GF food lists, recipes, the list is endless. They help and support the prescription scheme so that people continue to get GF food on prescription. However I think it should be noted that they are a Charity and without membership and the money raised by that they could not do all the work that they do to provide all the information, help and support. So joining is very important if possible to support them carry on their work.

Reply to this

LouiseWarvillToo
LouiseWarvillToo Thyroid UK
10 Mar 2013
Just like Thyroid UK! :-)

Louise
x

Reply to this

APsnotFab
APsnotFab
10 Mar 2013
Absolutely Louise, same for Hughes Syndrome Foundation! :-)

Reply to this

LouiseWarvillToo
LouiseWarvillToo Thyroid UK
11 Mar 2013
*like* x

Reply to this

Account deleted
anonymous
11 Mar 2013

This comment was deleted.

Maddie
Maddie
11 Mar 2013
Hi ChristineNeil - I did not make any donation. My membership is free until the end of April.

I did see the donation section but just ignored it. When I got to the end of the registration process there were no charges due.

I've just logged in and checked the members area, there was no charge for this - Maddie

Reply to this

Leave a comment

You must be signed-in to leave an answer. Sign in.

Not a HealthUnlocked member? Join today

Guidelines

Content on this site does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Views expressed are those of individuals and not of Thyroid UK.

Thyroid UK Guidelines

  • Do not post advertisements, links or information of any sort whatsoever, on where or how to obtain UK prescription only medications without prescription.
  • Thyroid UK cannot be held responsible for any discussions regarding self treatment or the outcome of any such discussions
  • For the full Thyroid UK support guidelines, click here
For the general site guidelines please click here

Spread the word!

Invite your friends and followers to find their community on HealthUnlocked!

Recent top bloggers

  1. pettals pettals (20 posts)
  2. rosetrees rosetrees (9 posts)
  3. ChemicalAngel ChemicalAngel (8 posts)
  4. helvella helvella (8 posts)
  5. lynmynott lynmynott (8 posts)
  6. nobodysdriving nobodysdriving (7 posts)
  7. NBob NBob (6 posts)

* posts in the last 30 days

HealthUnlocked logo

© 2013 All rights reserved.

Buy SSL
SSL CERTIFICATES - Get Info
Privacy-Policy-By-TRUSTe