I had a brain-wave...
I was thinking today, something I have had great difficulty with in recent years, and I remembered something from several years ago. In the past I would have linked this piece of information into the equation of my thyroid health automatically with no effort but, alas, my brain has not been functioning on all cylinders due to my pesky thyroid and the inadequate treatment thereof!
The thing I remembered happened when I was pregnant with my daughter. I had previously had a miscarriage at 12 weeks thanks to a doctor who refused to check my thyroid even though I was already diagnosed and was experiencing quite severe hypo symptoms. I then had a further miscarriage. As a result, my regular GP (a very good GP) referred me to a foetal medicine specialist as soon as I became pregnant again, especially as I also take epilepsy medication.
Well, he was a wonderful doctor. At around 6 months I had a hospital appointment to see him again. At this point I had inexplicably gained around 4 stone! I also had worsening hypo symptoms. This weight gain was way more than I should have gained despite eating healthily and walking several miles a day. It turned out that my T4 had dropped from around 13 to only 8 (ref range 7.8 - 14.4). He very sensibly increased my thyroxine dose even though I was still in range and regardless of the fact that my TSH was below the reference range. THIS IS THE THING I JUST REMEMBERED! MY TSH HADN'T INCREASED AT ALL!!!!
I am fairly convinced that my pituitary is no longer producing enough TSH. With a T4 that had dropped that low, and with my increasing hypo symptoms, I would have expected my TSH to have increased at least a little bit, at least somewhere into the normal range. I certainly wouldn't have expected it to be below range.
This does worry me somewhat. Currently, I am lucky enough to live in an area where they also check T4, not just TSH like they do in vast swathes of the country. What will happen if they switch to only testing TSH?
Just a thought that I will try not to lose sleep over!
Sorry about the rambling. I blame the glass of wine I had this evening